Living with PCOS, you can still live your life

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I have wanted to write this post for years now, in fact, I’ve probably written it in my mind a million times.  I just never really knew when it would be a good time to write it, what really to put in the post, and if it really would be an interesting post.   I guess the best way to do it is to start from the beginning and work my way over the last 19 years of my life. I was living with PCOS.

Living with PCOS

Living with PCOS, you can still live your life. Life with PCOS doesn't have to be hard if you work with your symptoms and maintain your health.
Yes, 19 years of my life is going to be written about. It’ll probably take me many posts over the course of possibly several months. I don’t want to bore you all with some of the boringness (is that even a word?) of my life, but at the same time I want to make sure that while you are reading this you understand what I’m talking about and hopefully it’ll help you or someone you know with Polycystic Ovarian Syndrome (PCOS).
In my teenage years, I knew that something just wasn’t right, my cycles never came when they were supposed to. However, as a teenager, you never really go to the doctor for something like that you just think it’s your diet, too much exercise, not eating correctly, or just stress.  Little did I know, I was living with PCOS.

Fast forward just a couple of years after I graduated high school and I started to go to the doctors regularly for checkups, and that is when my life changed, forever!

I was 19-years-old. It was probably my second annual visit, and the concern of my cycles was not coming when they were supposed to be really bothering me. I never knew when they would show up, and I always had to be prepared. I was also noticing things about me that just didn’t seem right for a female. I was getting some facial hair and hair on my abdomen.

I arrived at my appointment, nervous as any female is going in for her annual exam. The dreaded questions, the embarrassment of the hair where it shouldn’t be, etc.  I went through all the typical questions and answers and then the exam. Something didn’t look right; the doctor ordered some blood work and other medical exams.  A week later I returned for the results.

I was six days away from my 20th birthday when I found out I had PCOS.  My life completely changed because of the diagnosis. I was devastated.  Not only did I have this syndrome but because of this syndrome my dreams of being a mom were fading fast because there is no guarantee of being able to conceive when you have PCOS. It was possible, but it could turn into a very long and hard journey.

I had a very hard time dealing with the news. I broke it off with the guy I had been with for two years. I dropped out of college. I partied. I didn’t care about anything anymore. My dreams of having a family were almost gone!  I won’t go into how hard it hit me or how bad things got for me. Just know it was bad.

It wasn’t until after I got married that I started to research it. I always knew it was going to be a long and hard journey, but I didn’t know how hard or how long it would be. I searched on the internet. I purchased books. I even went back to my doctor for help.

I will continue this series with more information about my symptoms and infertility battles.  It may take a while to get the next post up, but be sure to keep an eye out for it!

Living with PCOS, you can still live your life. Life with PCOS doesn't have to be hard if you work with your symptoms and maintain your health.These are just a few of the books I’ve read in the past that have helped me in many different ways (if you purchase any of these books from clicking the links I will earn money).

Have you been diagnosed with PCOS?

12 Comments

  1. Kecia

    March 24, 2014 at 1:26 pm

    I have not been diagnosed with PCOS, but I know quite a few women how have. They discuss their struggles every now and then on Facebook. It’s enough to catch my attention and interest. I want to learn more about the syndrome so I look forward to your future posts in this series.
    Kecia recently posted…Child Hunger Ends Here – How You Can Help #ChildHungerMy Profile

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  2. Chrystal

    March 25, 2014 at 3:27 pm

    We always knew there wasn’t something right when I hit puberty, but PCOS wasn’t as documented 20 years ago as it is now. I was put on the pill to help with all the irregularity and painful cramps. As I hit my 20s it wasn’t something I really worried about since the pain was controlled with pills, the migraines as well (which started when I was 9.) By my 30s and husband #1 we could not conceive. The excuse was my body just needed time to reset itself after being on the pill for so many years. That marriage did not make it through the storm. Now, here I am almost 40 and in marriage. I found out a couple of years ago it was PCOS that caused me so many problems in life when I had an ultrasound done to see why I couldn’t conceive. Of course, now that I am older, I am opting to not have fertility because of all the statistics related to problems that could occur. If I had known what was wrong with me in the first place I could have been better prepared. While i am still trying to deal with the ‘never being able to have children’ issue, I am battling the weight issue caused by PCOS daily. Someday I’ll foster or adopt, but I’d like to be a bit healthier to chase after kids! My step kiddo keeps me pretty busy!
    Chrystal recently posted…Irish Breakfast DippersMy Profile

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    • Shawn Ann Griffith

      March 25, 2014 at 7:20 pm

      I know what you mean Chrystal! You’ll hear all about it in my future posts. I was super lucky, I had an OB that was up-to-date on EVERYTHING and diagnosed me when they were all still learning about it. I think that’s why I’ve stuck with him for everything over these last almost 20 years. I’m so sad that he’s retiring from practicing and only doing teachings 2 days a week now, but he’s been practicing for 40 years now!

      Problem I’m running into now is that I have so much knowledge on PCOS and how it’s affecting me and regular doctors are not wanting to help with certain symptoms without making me wait and do multiple sets of tests, etc.

      Reply

  3. Monique

    March 29, 2014 at 10:51 am

    I’ve heard of it, but I know nothing about it. Thanks for speaking of your struggles and for sharing other resources. There are things we seem to take for granted until that right has been taken away. I look forward to reading your upcoming posts. Thanks for sharing your intimately personal story.
    Monique recently posted…Book Review: The DIY Pantry by Kresha FaberMy Profile

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  4. Jenn p

    March 30, 2014 at 2:17 pm

    I have never heard of this syndrome before but sounds like it definitely have a huge impact on your life. I look forward to reading future posts to find out more.
    Jenn p recently posted…Homemade No Bake Italian Cannoli Dessert in Mason JarMy Profile

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  5. PCOS: The Symptoms and Side Effects — Shawn Ann's World

    March 31, 2014 at 6:02 am

    […] has been 19 years, almost to the day, when I was diagnosed with PCOS.  It has changed my life, tremendously, and not always for the good. I do have to say that I was […]

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  6. Lauren Weber
    Twitter:

    April 1, 2014 at 3:22 pm

    It’s so brave to share this part of your life. Sharing your struggles on such a public forum can be therapeutic and will help educate those of us who aren’t very familiar with PCOS! I look forward to the rest of the series 🙂
    Lauren Weber recently posted…Things To Do With Kids in April 2014 in Southeast MichiganMy Profile

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  7. Lara

    April 3, 2014 at 11:02 am

    I have never heard of this… You are amazing and brave to share this part of your life. (((hugs)))
    Lara recently posted…A Year Ago Today…My Profile

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  8. Having PCOS and Getting Pregnant, It Is Possible — Shawn Ann's World

    May 22, 2014 at 8:00 pm

    […] started talking to you about my diagnosed and Living Your Live with PCOS just a couple of months ago.  I even talked about the symptoms and side effects I have and even […]

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  9. PCOS and pregnancy, it is possible!

    March 11, 2016 at 8:20 am

    […] started talking to you about my diagnosed and Living Your Life with PCOS just a couple of months ago.  I even talked about the symptoms and side effects I have and even […]

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  10. […] has been 19 years, almost to the day, when I was diagnosed with PCOS.  It has changed my life, tremendously, and not always for the good. I do have to say that I was […]

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  11. […] to conceive (TTC) again. There are no more babies for us. I’ve written about when I was diagnosed with PCOS, that it is possible to get pregnant if you have PCOS, and I have two hurricanes for boys. […]

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